Renal Services - Salford Royal

Renal services at Salford Royal Hospital are in the Hope Building. We help people with all types of kidney problems. Our team cares for people with:

  • Short-term and long-term kidney disease
  • People preparing for dialysis
  • Patients on dialysis
  • People who have had kidney transplants

We have the biggest peritoneal dialysis programme (a type of home dialysis) in the North West of England. Our kidney department is the main centre for the West part of Greater Manchester. We look after patients from:

  • Oldham
  • Rochdale
  • Bury
  • Wigan
  • Bolton

Our kidney doctors run clinics at or near all the local hospitals in these areas, as well as at Salford Royal.

Our Dialysis Services

Dialysis is a treatment that does some of the work your kidneys would normally do. We have:

  • A main dialysis unit at Salford Royal Hospital
  • Four smaller dialysis units in Bolton, Wigan, Oldham and Rochdale

Hospital Beds

For patients who need to stay in hospital, we have Ward H3 with:

  • 25 beds in total
  • Three areas with 4 beds each
  • 13 private rooms with their own bathrooms

Research

Salford Royal Hospital is one of the UK's most important places for kidney care and research. Our department studies many different kidney problems to find better treatments.

You will be offered an appointment at either Salford Royal or one of the Kidney Care Centres depending on which is closest to you or where a particular specialist service is held. You will be informed whether this is a telephonic or face-to-face consultation.

It’s always helpful to bring an up-to-date list of medications with you.

Please check your contact details are correct and up to date when you check in to reception.

After check in, you will be called through to have your observations checked e.g. blood pressure, weight. If you were previously given a urine bottle, please kindly bring a urine sample from that morning or you will be a given a urine bottle when you have your observations done.

Please kindly wait back in the waiting area until you are called in for your appointment.

If you are expecting a telephone appointment, please be aware this may come from a withheld number.

Prior to your Renal consultation, you will be contacted about having a blood and urine test ahead of your appointment. If your appointment is face-to-face, you will usually have your blood and urine tests taken when you attend hospital, unless contacted otherwise. 

Please see below for information on where blood testing is available for Renal patients.  

You will need to bring along your blood request form, which is enclosed with your letter.  If you do not have a blood form, please contact us on 0161 206 1429 and we will organise for this to be sent to you.  

Salford Royal Hospital, Renal Outpatient Department
Blood tests are available by appointment only.  Please telephone the booking office on 0161 206 5330. Lines are open between 09:00am and 15:00am, Monday to Friday.  Blood appointments are available Monday to Friday. Please note, patients may only access the Hospital by the Main Entrance located from the Central Car Park.  

Royal Bolton Hospital 
Strictly by appointment only. Please telephone the booking office on 01204 390923. Lines are open between 09:00 to 12:00 Monday to Friday. The blood room itself is open until 16:30. Unfortunately our Bolton Kidney Care Centre is not open for Outpatient Services, including blood tests (check if re-opened).  

Wigan Kidney Care Centre
Blood tests are available by appointment only.  Please telephone the booking office on 0161 206 5330. Lines are open between 09:00am and 15:00am, Monday to Friday.  Blood appointments are available Monday to Friday.  

Thomas Linaker Centre
Blood tests are planned using an appointment booking system. Please call the booking line below: 01942 773151. Blood appointments are available Monday to Friday.  
    
Oldham Kidney Care Centre
Blood tests are available by appointment only. Please telephone the booking office on 0161 206 5330. Lines are open between 09:00am and 15:00am, Monday to Friday.  Patients living in the Oldham area are also able to use the Rochdale and Fairfield hospitals, or alternatively book into one of the blood clinic sessions at Salford Royal Hospital.  

Rochdale Infirmary 
Rochdale Infirmary operates a drop in blood clinic. You should attend the Blood Room, Outpatients Level C with your blood request form anytime between 08:30am and 16:00pm, Monday to Friday. You do not need to telephone to book an appointment.  

Fairfield General Hospital 
Fairfield General Hospital operates a drop in blood clinic. You should attend the Blood Room, Renshaw Suite in the Outpatients Department with your blood request form anytime between 08:30am and 16:00pm on a Monday, Tuesday, Wednesday or Friday.

Kidney Research: We Need Your Help

Kidney disease affects more than 8% of adults in the UK, with many cases in people from ethnic minority backgrounds. Although scientists do lots of kidney research, not enough kidney patients join these studies.

Why We Need You

Patient and public involvement brings together doctors, researchers, patients, carers and ordinary people. Our department works closely with the Donal O'Donoghue Renal Research Centre (DRRC) to create a special group led by Professor Helen Hurst. This group will:

  • Help design future research projects
  • Work on preventing kidney disease and finding it early
  • Tell us what matters most to patients about kidney disease care

How You Can Help

We need people who have experience with kidney disease - either as patients or as carers for someone with kidney disease. Your real-life experience helps make sure research focuses on what truly matters to people affected by kidney disease.

We will give you support and training if you need it.

Join Our Team

You don't need any medical qualifications or special knowledge to join. We want to hear about your experiences whether you're a patient, carer or family member.

If you'd like to get involved, please email us at: drrc@nca.nhs.uk

Kidney Care UK

https://kidneycareuk.org/get-support/kidney-care-uk-patient-support-advocacy-service/

YAKidneyGroup

https://kidneycareuk.org/get-support/young-adult-kidney-group-yakg/

National Kidney Federation

https://www.kidney.org.uk/helpline-leaflets

GMKin

https://kinet.site/gmkin/

Taking part in research / Donal O Donoghue Research Centre:

https://www.ncaresearch.org.uk/patients-public/

Specialist Clinics and Services

The AKCS clinic is run by the chronic kidney disease (CKD) team. It cares for patients with advanced CKD (stages 4 and 5). The team has expert knowledge in high blood pressure, too much fluid in the body, bone problems, and anaemia. They also help patients prepare for kidney treatments, including transplants, haemodialysis, peritoneal dialysis, or supportive care.

As a team, we help patients make decisions about treatment for kidney failure. We also arrange one-to-one sessions where patients can see dialysis machines. These sessions take place in different locations, including Oldham, Bolton, and Wigan. Patients can get information by phone or in person, and we provide leaflets with details.

Most patients with kidney function below 20% come to this clinic. However, every patient is different. Doctors decide if AKCS is right for each person based on their health and how quickly their kidneys are getting worse. Patients in AKCS usually stop going to their previous kidney clinics. However, in some cases, they may continue seeing their old consultant as well.

The CKD team also treats anaemia, a common problem in chronic kidney disease. Patients may need iron through a drip, injections, or tablets. The team helps with prescriptions and checks the treatment is working.

The AKCS clinic runs most weeks in Salford, Oldham, Rochdale, Wigan, and Bolton.

Consultant Nephrologists

Dr Rosie Donne

Dr Robert Nipah

Dr Maharajan Raman

Dr James Tollitt

Prof Helen Hurst

Dr Rony George

Dr Ibrahim Ali

Dr Thili Abeyguneratne

Dr Yasser Al Mula Abed

Advanced practice and comprehensive geriatric assessment.

An integrated service for people with heart failure, kidney disease, and diabetes. A regional team gives advice to heart failure teams across Greater Manchester using the PatientPass online system.

The diabetes clinic is part of a team clinic for Salford patients with kidney disease. It helps reduce hospital visits and makes sure care is joined up at different stages of kidney disease. The clinic runs twice a month with Dr. Angela Paisley and nurse Caroline Eden.

Team members:

Consultant Nephrologists

Prof Darren Green

Prof Smeeta Sinha

Prof Dimitrios Poulikakos

Dr Helen Alderson

Clinical Research Fellow

Dr Saif Al Chalabi

Consultant Cardiologist

Dr Nehal Hussain

Lead Heart Failure Specialist Nurse

Penny Darby

We are a team of specialists working together to treat kidney problems. Our team includes consultants, nurses, a pharmacist, and support staff. We all work together to help patients with a condition called glomerulonephritis.

About Glomerulonephritis

Glomerulonephritis is when the filters in your kidneys become inflamed or swollen. This can happen to the kidney tissue too. It's not a common condition, but it can be serious and often needs special medicines to treat it.

How We Help You

Our job is to:

  • Figure out what's causing your kidney problem
  • Create a treatment plan that works for you
  • Explain your condition in ways you can understand
  • Include you in all decisions about your care

Research Opportunities

Many patients are interested in helping with research studies. These studies are important because they help doctors learn more about kidney diseases and find better treatments.

If you're interested in being part of a research study, our research nurses might talk to you about it. You can also tell your consultant if you want to learn more about getting involved.

Consultant Nephrologists

Dr Helen Alderson

Dr Tina Chrysochou

Prof Philip Kalra

Dr Dimitrios Poulikakos

Dr Francesco Rainone

Dr Jim Ritchie

Prof Smeeta Sinha

Helpful resources:   

https://ukkidney.org/rare-renal/radar

Our clinic started in 2016 to help patients with rare diseases that affect both the kidneys and blood. These conditions can be cancerous or non-cancerous, but all of them need experts from different medical fields working together.

How Our Clinic Works

We see patients once a month. We help people who are:

  • Being tested for certain conditions
  • Already diagnosed with Multiple Myeloma (a type of blood cancer)
  • Living with Amyloidosis (a disease where abnormal proteins build up in organs)
  • Dealing with MGRS (a condition where abnormal proteins damage the kidneys)

After seeing patients, our team of kidney doctors, blood specialists, and imaging experts meet to discuss each case. Most patients need both kidney and bone marrow samples taken to confirm their diagnosis. We work with experts at our hospital and partner with specialists at Imperial College in London, the National Amyloid Centre, and the Leeds blood disease testing service.

Our Goals

If we catch and treat these conditions early enough, patients can often go into remission, meaning the disease becomes inactive. Our main aims are to:

  • Diagnose patients quickly
  • Start treatment early
  • Prevent kidney failure
  • Evaluate patients for possible stem cell or kidney transplants
  • Provide careful follow-up care after transplants

Team members

Consultant Nephrologist

Dr Francesco Rainone (Clinical Lead for MGRS & Pan-Manchester Amyloidosis MDT Lead)

MDT Lead (Haematology Oldham Care Organisation)

Dr Satarupa Choudhuri

Resources

Guidelines for diagnosis and management of MGRS in the UK can be found at the following link: DOI: 10.1111/bjh.19956

Further information about the conditions covered by the MGRS label can be found at the following links: www.myeloma.org.uk  www.amyloidosis.org.uk 

Monoclonal Gammopathy of Renal Significance | UK Kidney Association

The national Fibromuscular Dysplasia (FMD) clinic was created in 2019 at Salford Royal Hospital following high interest after the UK's first FMD patient information day. This clinic has grown to include doctors who specialise in kidneys, brain and nerve disorders, and medical imaging—all working together to help patients with FMD.

What is FMD?

FMD is an uncommon condition that causes:

  • Narrowing in one or more arteries
  • Sometimes enlargement or other changes in small and medium-sized arteries

This condition affects each person differently, which is why a specialized clinic was needed. While FMD is found most often in middle-aged women, it can affect men and people of all ages.

How We Help

Our clinic team works to:

  • Confirm whether you have FMD
  • Provide care from multiple medical specialists
  • Lead the UK FMD study
  • Offer you opportunities to join research studies that match your situation

Team members

Consultant Nephrologists
Dr Tina Chrysochou (FMD Clinic Lead)
Dr Aine de Bhallis

Consultant in Stroke Medicine
Dr Philip Thomas

Consultant Neuroradiologist
Dr Amit Herwadkar

Consultant Interventional Radiologist at MFT
Dr Ed Lake

At our kidney clinic, we see new patients and patients who need follow-up care. You might be sent to us by your GP or another hospital doctor if you need tests for kidney problems.

What happens at the clinic?

When you come to our clinic:

  • You will often have regular blood tests
  • You will get information that's made just for you
  • Our doctors will try to find out what's causing your kidney problem

Sometimes we might need you to have:

  • An ultrasound scan of your kidneys
  • A CT scan of your kidneys
  • Sometimes, a small sample (biopsy) of your kidney

How we help you stay healthy

Our doctors and nurses will:

  • Help you to live a healthy and active life
  • Tell you about places near you or websites that can help you lose weight if needed
  • Show you ways to be more active
  • Talk to you about treatments that can slow down kidney disease
  • Sometimes suggest treatments that might make your kidneys better

Who you might see

You might see or talk to:

  • A Consultant (senior doctor)
  • A Nurse practitioner
  • A doctor who is training to be a kidney specialist
  • A junior doctor

If they find anything unusual in your tests or scans, they might ask you to see another type of specialist doctor. They might also suggest you meet with our kidney dieticians, who know all about the best foods for people with kidney problems.

Before your appointment

Before you come to see us, we ask that you:

  • Get your blood tested (we'll usually send you a form in the post weeks or months before)
  • Check your blood pressure at home

 

 

Helpful resources

https://kidneycareuk.org/kidney-disease-information/

Blood pressure test - NHS (www.nhs.uk)

https://www.nhs.uk/conditions/blood-pressure-test/

https://www.bloodpressureuk.org/your-blood-pressure/how-to-lower-your-blood-pressure/monitoring-your-blood-pressure-at-home/how-to-measure-your-blood-pressure-at-home/

https://patientsknowbest.com/

https://beamfeelgood.com/kidney-disease

https://www.ukkidney.org/patients

https://kidneycareuk.org/get-support/healthy-diet-support/kidney-kitchen/?gad_source=1&gclid=CjwKCAiAkc28BhB0EiwAM001TYaIgWJX7AdsYSrj2ju3MATThn5pe7MbFTaRZTM7ScHZKWMX94NLnBoCSFEQAvD_BwE

Our Kidney Genetics Clinic was set up after suggestions from the Northwest Kidney Network Genomics project. We aim to bring genetics services directly into the kidney department and create clear, standard ways of testing for genetic conditions.

What We Do

We help arrange genetic testing for patients who:

  • Meet certain requirements
  • Might have kidney disease caused by their genes

Each patient's case is discussed at our Northwest Kidney Genomics team meeting. At these meetings, genetics experts from Manchester and Liverpool work together with kidney doctors. Ideally, the doctor who referred you should attend this meeting.

Why This Matters

Finding out if your kidney condition has a genetic cause can:

  • Help doctors better understand your condition
  • Guide treatment choices
  • Provide information for family members who might be affected
  • Give you clearer answers about your health

Team members

Consultant Nephrologist
Prof Smeeta Sinha

Highly Specialist Nurse RAS
Toni Clough

Helpful resources

Genetic and genomic testing - NHS (www.nhs.uk)

Inherited metabolic disorders are rare conditions you get from your parents through your genes. They can cause problems in many parts of your body, including your kidneys. The main conditions that affect kidneys include Fabry's disease, Cystinosis and Methylmelanoic acidaemia.

Our Special Clinic

The Mark Holland Metabolic Unit at Salford Royal Hospital is a special centre that treats adults with these inherited conditions. It's one of only five expert centres in England. People travel here from all over, including Scotland, Wales, Newcastle and the Isle of Man.

How Our Clinic Works

We run a joint kidney and metabolic medicine clinic every three months. This clinic is for patients who have:

  • Metabolic disorders
  • Kidney problems (chronic kidney disease)
  • Had a kidney transplant
  • Need dialysis treatment

At this clinic, you'll see a team of experts working together, including:

  • A doctor who specialises in metabolic medicine
  • A kidney doctor
  • A specialist nurse for metabolic conditions
  • A dietician
  • A pharmacist

This special clinic gives patients with these rare genetic disorders the chance to get advice from different specialists all in one place.

Team members

Consultant Nephrologist
Dr Rajkumar Chinnadurai

Consultant in Metabolic Medicine
Dr Reena Sharma

Helpful resources

Fabry Disease - Symptoms, Causes, Treatment | NORD (rarediseases.org)

Cystinosis - Symptoms, Causes, Treatment | NORD (rarediseases.org)

Methylmalonic Acidemia - Symptoms, Causes, Treatment | NORD (rarediseases.org)

Our team helps people who want to give one of their kidneys to someone else. We support donors from start to finish.

What We Do

We work with kidney donors through every step of their journey:

  • First meetings and check-ups
  • All the tests in between
  • Final blood tests before surgery

Our job is to help donors make good choices. We make sure they fully understand what donating a kidney means and that it's safe for them to do so.

We also help donors with money matters. Donating a kidney shouldn't cost you money, so we help donors get back money they spend on travel and any wages they lose while recovering.

Looking After Our Donors

We're proud of how we care for all our donors - both past and present. We check up on every donor once a year for the rest of their life. This helps us make sure they stay healthy overall, not just their remaining kidney.

At these yearly check-ups, we:

  • Take routine measurements
  • Do blood tests
  • Have a chat with one of our nurses about kidney health

If we spot any problems, we'll let the donor's GP know straight away.

Retry

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Our kidney stone clinic brings together a special team to help people who get kidney stones often. The team includes:

  • Kidney doctors
  • Surgeons who work on the urinary system
  • Food experts (dietitians)

What We Do

We work to find out why people keep getting kidney stones, especially if there might be rare or inherited causes. Our goal is to stop stones from coming back.

We work closely with:

  • Genetics experts who can tell if your stones run in your family
  • Other stone clinics across Greater Manchester

How We Help You

We aim to:

  • Check you quickly and find out what's causing your stones
  • Help you get long-term care closer to your home
  • Connect with special centres across the country for the newest treatments
  • Explain why you're getting kidney stones
  • Suggest changes to your diet and lifestyle
  • Recommend medicines that might help

Our food experts (dietitians) are very important to our team. When you visit us, you can get all the advice you need in one place.

Team members

Consultant Nephrologist
Dr Jim Ritchie

Consultant Urologist
Mr. David Ross

Renal Dietitian
Rebecca Pearce

Helpful resources

Dietary advice for patients with kidney stones

Cystinuria UK

Kidney Care UK - Kidney stone information

Oxalosis and hyperoxaluria foundation

What We Do

Our clinic helps patients move smoothly from advanced kidney care to peritoneal dialysis. When your kidneys aren't working well enough and you choose peritoneal dialysis (PD) as your treatment, we're here to support you.

How It Works

  1. First, the kidney disease team checks if PD is right for you. They'll visit your home to make sure it's suitable.
  2. When your kidney function drops to a level where you'll soon need dialysis, you'll get an appointment at our clinic at Salford Royal Hospital.
  3. At the clinic, you'll meet with:
    • A PD specialist nurse
    • A PD consultant

They will explain:

  • How PD works as a home treatment
  • What you'll need to do each day
  • How our team will help you
  1. We'll check if you're suitable for a PD catheter (the tube used for dialysis) by:
    • Reviewing your medical history
    • Doing an ultrasound scan of your abdomen
    • Explaining the procedure and its risks
    • Getting your written permission

Follow-up Care

Once you start peritoneal dialysis, we'll see you regularly to check how you're doing.

Special Support for Older Patients

We have a special clinic called the Peritoneal Dialysis Frailty Clinic for older patients or those with different needs. This clinic:

  • Creates personalised dialysis and medicine plans
  • Assesses needs like mobility and memory
  • Checks your mood and other symptoms

Professor Helen Hurst and Advanced Clinical Practitioner Joanne Martin usually visit these patients at home.

Team members

Consultant Nephrologists

Prof Dimitrios Poulikakos

Dr David Lewis (PD team lead)

Dr Rajkumar Chinnadurai

In-house Specialist Nurses

Joanne Collier

Laurie Crosby

Joanne Martin

Prof Helen Hurst

Community Specialist Nurses

Janet Blood

Mena Chauhan

Andzelika Kot

Emma Hayes

Laura Hayes 

Ameer Gause

Community Health Care Assistants

Kim Kirkwood

Paula Tooby

Claire Baxter

Clarissa Duffy

Helpful resources

Kidney Care UK, https://kidneycareuk.org/

Association of Nephrology Nurses, https://ann-uk.org/

International Society for Peritoneal Dialysis (ISPD), https://ispd.org/

Leaflets

Renal - Peritoneal Dialysis (PD)

Expertise / What the clinic offers

  • Specialist Clinic started 2016.
  • Over 300 APDKD patient within service.
  • Holistic multidisciplinary management of PKD patients and families.
  • Close collaboration with PKD Charity.
  • Industry links to foster research.

Team members

Consultant Nephrologists

Dr Grahame Wood

Dr Anie De Bhaillis

Our special clinic helps young people (40 years old or younger) and those with difficult-to-treat high blood pressure. We don't see patients whose high blood pressure is caused by long-term kidney disease.

What Makes Our Clinic Different

Our clinic looks for hidden causes of high blood pressure that normal doctors might miss, such as:

  • Hormone problems
  • Blood vessel issues in the kidneys
  • Heart conditions

If we find that something specific is causing your high blood pressure, we'll refer you to the right specialist for treatment.

How We Help

We also check whether your high blood pressure might be:

  • Only happening at the doctor's office (called "white coat hypertension")
  • Due to not taking medicines properly
  • Because of incorrect blood pressure measurements

For patients with truly stubborn high blood pressure, we create a step-by-step treatment plan to help get it under control.

Team members

Consultant Nephrologists

Dr David New

Prof Dimitrios Poulikakos

Dr Rajkumar Chinnadurai

Helpful resources

https://bihs.org.uk/guidelines

https://www.ukkidney.org/health-professionals/guidelines/commentary-nice-guideline-ng136-hypertension-adults-diagnosis-and

Working closely with consultants and other medical colleagues, the Renal Same Day Emergency Care service is focussed on getting patients out of hospital faster and avoiding the need to stay at hospital overnight.

Team members

Consultant Nephrologists

Dr James Tollitt

Dr Aine DeBhailis

Dr Rony George

RAS Specialist Nurses

Sr Vicky Sutch (Team Leader)

Sr Toni Clough

Renovascular diseases affect the blood vessels that carry blood to your kidneys. Our kidney artery clinic (renovascular clinic) is run by doctors who are experts in these conditions and have done lots of research about them.

Our Experience

Our centre has been studying kidney artery problems for 25 years. We've done important research about a condition called atheromatous renovascular disease, where fatty deposits narrow the kidney arteries.

How We Help You

Our team:

  • Helps you understand your condition
  • Supports you in making choices about treatment
  • Works with you to prevent the disease from getting worse
  • Meets with specialist X-ray doctors to discuss the best options for some patients

Visiting Our Clinic

The clinic happens once a month. You can either:

  • Come to see us in person at Salford
  • Have your appointment over the telephone

This is an online kidney clinic for patients who are already on the best treatment for their condition but still need a kidney doctor to keep an eye on them.

How it works

Two weeks before your check-up:

  • You'll get a text message reminder
  • You'll need to go and have your kidney blood tests done

A few days before your check-up:

  • You'll get another text with an online form
  • You'll need to fill in your blood pressure readings
  • You'll need to record your weight
  • You can write down any worries you have

What happens next

The doctor won't phone you. Instead:

  • They'll look at your form, blood pressure, weight and any concerns
  • They'll text you back with a plan
  • They'll also let your GP know what's happening, as usual

If you have any problems with this clinic, please ring 0161 206 1429.

When your kidneys work at less than 15% (CKD stage 5), the best treatment for many people is getting a new kidney from a living donor before you need dialysis. This is called a "pre-emptive transplant."

Our Clinic's Purpose

Our clinic helps patients with failing kidneys get a transplant before needing dialysis machines. Your kidney doctor and CKD team will refer you when they think you're ready to start the transplant process.

Important things to know:

  • You can join the waiting list or receive a kidney from someone you know when your kidney function drops to 15% or less
  • Not everyone with kidney disease can have a transplant
  • If you need a kidney from the national waiting list, you might wait 2-3 years

The One-Stop Clinic Experience

Our one-stop clinic helps you avoid multiple hospital visits by doing several tests in one day:

  • Heart tests
  • Chest X-ray
  • Transplant assessment with specialist nurses

This visit might take up to 4 hours, but it saves you making several separate trips.

Dr Gavin Freeman runs a special heart assessment clinic for patients who need more detailed heart checks. You might have a stress echo test (which shows how your heart works during exercise) and other heart assessments.

What Happens Next?

After your tests:

  • Your kidney consultant reviews your results
  • If everything looks good, you're referred to transplant surgeons at Manchester Foundation Trust
  • You'll meet with a kidney specialist to talk about the good and bad points of having a transplant
  • You'll have a face-to-face meeting with a transplant surgeon
  • You might be placed on the active transplant list or the suspended list depending on your assessment
  • Some patients need to see anaesthetists or other specialists before a final decision

Planning Ahead: Transplant First Clinic

We also run an earlier education clinic called "Transplant First." This teaches you about living kidney donation (getting a kidney from family or friends). You can attend this clinic years before you might need a transplant.

Helpful resources

Kidney Research UK https://www.kidneyresearchuk.org

Blood and Transplant  https://www.nhsbt.nhs.uk/organ-transplantation/kidney/

Manchester Foundation Trust       

https://mft.nhs.uk/mri/services/transplants/

KidneycareUK                                  

https://www.kidneyresearchuk.org/kidney-health-information/living-with-kidney-disease

British Transplantation Society

https://www.bts.org.uk

National Kidney Federation

https://www.kidney.org.uk

Social Media

Salford Royal Renal Department Twitter - @salfordrenal

Salford Royal Renal Department Facebook - www.facebook.com/SCOrenal

MFT renal transplant coordinators Twitter - @MRI_TxRecipient

MFT Transplant unit Twitter - @MRITransplant

Renal Patient Led Advisory Network Twitter - @RPLANNW

KidneyCareUK Twitter - @KidneyCareuk

NHS Blood and Transplant - @NHSBT

Our Tuberous Sclerosis (TS) Clinic opened in 2015. We help patients with TS and support their families and carers across the region.

What We Do

We check for all the main problems that can happen with TS, especially:

  • Kidney growths called angiomyolipomata (AMLs)
  • Brain tumours called subependymal giant cell astrocytoma (SEGAs)
  • Seizures (epilepsy)

Our Team

When needed, we work with other specialists who are keen to help, including:

  • Brain surgeons
  • Kidney and bladder specialists
  • Heart doctors
  • Skin doctors
  • Lung specialists
  • Doctors who help with brain-related mental health
  • Psychologists who test how the brain works

We also work closely with:

  • Genetics experts from Central Manchester Trust
  • Eye specialists from Manchester Royal Eye Hospital
  • Anaesthetists (sleep doctors) who are very important when patients need scans while asleep
  • Dentists who can check teeth when patients are asleep, which helps when patients find it hard to visit normal dentists

Team members

Consultant Nephrologists

Dr David New

Epilepsy Specialist

Dr Peter Clough

Senior Clinical Pharmacist

Dr Jude Allan

Helpful resources

The Tuberous Sclerosis Association

Our service offers special care for patients with vasculitis and lupus from all over the region. We're what's called a tertiary centre, which means we provide advanced specialist care.

Our Team

We bring together different kinds of doctors to help look after you:

  • Kidney specialists (renal consultants and doctors in training)
  • Joint and muscle specialists (rheumatology)
  • Ear, nose and throat doctors (ENT)
  • Medicine experts (pharmacists)

Working Together

We hold team meetings where all these specialists discuss how to best help each patient. Often, we also invite:

  • Brain and nerve specialists (neurologists)
  • Lung specialists (respiratory doctors)

This teamwork is really important because vasculitis and lupus can affect many different parts of your body at once. Having all these experts working together means you get the right care for all the parts of your body that might be affected.

Our clinic was created in 2013 by young people for young people. If you have any type of kidney condition and are between 16 and 30 years old, this clinic is for you. 

Who We Are

We are a team of different healthcare professionals who really care about young adults. We work closely with children's kidney doctors to:

  • Help you move smoothly from children's services to adult care
  • Support you if you've come straight to adult services

You can choose to have your appointments in person or over the telephone.

How We Help You

We want to help you understand your kidney condition and discover the best ways to look after yourself. We do this by:

  • Using special toolkits like "Ready Steady Go" to help with your transition
  • Checking on your mental health with questionnaires
  • Offering support with your mood and diet
  • Connecting you with other young people who have similar conditions

If you're interested, we can also tell you about research studies that might be right for you.

Further information can be found here:

Renal YAC Services

Reach  - UK Wide Renal Youth Club

Team members

Consultant Nephrologists

Dr Tina Chrysochou (Clinic Lead)

Dr Jim Ritchie

Clinical Psychologist

Dr Amy Waugh

Helpful resources

InfoKid: https://infokid.org.uk/

EdRen: https://edren.org/ren/

YAKidneyGroup: https://kidneycareuk.org/get-support/young-adult-kidney-group-yakg/

Kidney Care UK: https://kidneycareuk.org/get-support/kidney-care-uk-patient-support-advocacy-service/

National Kidney Federation: https://www.kidney.org.uk/helpline-leaflets

GMKin: https://kinet.site/gmkin/

Guidance for schools

https://assets.publishing.service.gov.uk/government/uploads/system/uploads/attachment_data/file/803956/supporting-pupils-at-school-with-medical-conditions.pdf

Ready Steady Go Transition Programme:

Home - TIER Network (readysteadygo.net)

https://kidneycareuk.org/get-support/healthy-diet-support/kidney-kitchen/?gad_source=1&gclid=CjwKCAiA74G9BhAEEiwA8kNfpVNbw1ZLBHjAFBWCHxcTKSH6MRV_SsYelNmm98OsHDUoEgXdVVxrWRoC1KQQAvD_BwE

Accessibility tools

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