Urology - Your Prostate Cancer Personalised Stratified Follow Up (PSFU)

What is PSFU?

PSFU is a new way patients can be followed up after their treatment.

It is a supported self-management follow up pathway, where you will not have routine appointments. However, your Prostate Specific Antigen (PSA) blood test results will be monitored using a tracking computer system.

You will have the support of a Urology Clinical Specialist Nurse and Pathway Navigator (PSFU team).

What are benefits of PSFU?

• You do not have to make regular trips to the hospital at times when you are feeling well. You can just concentrate on living your life
• You will be able to contact your PSFU team directly, if you have any worries or symptoms relating to your prostate cancer or treatments, instead of having to wait for your next clinic appointment
• If your PSA results fall outside the personalised safe ranges or you miss having a PSA test taken. The PSA tracking computer system alerts the PSFU team and appropriate action can be taken promptly

Before starting on PSFU pathway

• You will receive a phone call from your PSFU team, where they will explain their role and your role in PSFU and ensure you have their contact details
• We will review your prostate treatment summary (this document explains potential side effects, signs and symptoms of recurrence)
• We will discuss the frequency, (usually every 6 months) of when and where your PSA blood test should be taken
• You will have the opportunity to complete a Holistic Needs Assessment (HNA) to ensure your physical, practical, emotional and social needs are met
• We will provide appropriate written information around post treatment side effects, prostate cancer and local services

Whist on PSFU

• Your PSA blood test will be taken in the Community Diagnostic Centres (CDCs). The PSFU team will ring you to book your appointment. Also, you will receive a PSA appointment remind letter and results letter once done via post
• If you have any symptoms or worries relating to your prostate cancer or side effects from treatment, you can call or email your PSFU team

What happens if my PSA levels increase?

If your PSA increases, the PSFU team will contact you. Together we will discuss the next steps.

How long will I be on PSFU?

Five years following treatment, you will then be discharged back to the care of your GP where your PSA will be monitored lifelong.

What sort of symptoms should I look for?

You should contact us, if you experience any of the following symptoms or have any other symptoms that concern you.

• Blood in the urine
• Increasing difficulty in passing urine
• New unexplained bone pain lasting more than 6 weeks

Where can I have my PSA blood test?

The PSFU team will arrange an appointment to have your bloods taken in the Community Diagnostic Centres (CDCs).

Before this test please can you ensure that you don’t do any vigorous exercise (especially heavy lifting or riding a bicycle) or ejaculate for 3 days.

Contact the PSFU team

Julie Taylor, Pathway Navigator
Belen Portillo, Macmillan Prostate Cancer Pathway Clinical Nurse Specialist (CNS)
Telephone 07977 731278 from Monday to Friday 8am to 4pm.
Email: PSFU-urology@nca.nhs.uk. This email address is monitored Monday to Friday 8am to 4pm and we aim to respond to you by the next working day.

If you are unable to contact the PSFU team, you can call the Salford Urology CNS team on 0161 206 5380.

Where can I go for more information on Personalised Stratified Follow Up?

https://gmcancer.org.uk/programmes-of-work/personalised-care/

Useful additional information:

Salford Macmillan Information Centre
Tel: 0161 206 1455
Email: salfordcancerinfo@nca.nhs.uk

Salford Prostate Cancer Support Group
Tel: 07552 486704
Email: SalfordPCSG@outlook.com
Website: https://www.salford-prostate-cancer-support- group.co.uk/

Prostate cancer UK
https://prostatecanceruk.org/

A new website for people affected by prostate cancer
www.theinfopool.co.uk

Macmillan Cancer Support
www.macmillan.org.uk
Freephone: 0808 808 00 00